Table 3 Frequency of Symptoms at Most Severe Symptomology: Physical Emotional, and Cognitive
From: The burden of familial chylomicronemia syndrome in Canadian patients
N (%) | |
|---|---|
Physical (21 symptoms) | |
Pancreatic Pain | 9 (24) |
Asthenia | 9 (24) |
Bloating | 8 (22) |
Indigestion | 7 (19) |
Xanthoma | 7 (19) |
Generalized abdominal pain | 6 (16) |
Joint pain | 6 (16) |
Lack of appetite | 6 (16) |
Fatigue | 6 (16) |
Flatulence | 6 (16) |
Back pain | 2 (5) |
Numbness or tingling in the fingertips or toes | 2 (5) |
Headaches | 2 (5) |
Respiratory problems | 1 (3) |
Jaundice | 1 (3) |
Skin changes that resemble a light sunburn | 1 (3) |
Feeling cold all the time | 1 (3) |
Steatorrhea | 1 (3) |
Emotional (13 symptoms) | |
Constant uncertainty about having an attack of pain or AP at any time | 10 (27) |
A/F/W about having to plan what to eat or how much I can eat | 8 (22) |
A/F/W that if eating food prepared by someone else, even a single ingredient could cause my symptoms to flare | 6 (16) |
Feeling out of control / powerless | 4 (11) |
Embarrassment that I am always thinking about and planning for my food | 3 (8) |
Social withdrawal / feeling isolated | 3 (8) |
Anger / frustration with having FCS | 3 (8) |
A/F/W in social situations because of food | 2 (5) |
Feeling sad / down / blue / depressed | 2 (5) |
Feeling misunderstood / not understood | 2 (5) |
Anger/F/W around having to get regular testing for my FCS | 2 (5) |
A/F/W about health due to FCS | 1 (3) |
A/F/W in social situation for non-food reasons | 1 (3) |
Cognitive (7 symptoms) | |
Difficulty concentrating | 3 (8) |
Difficulty hearing | 1 (3) |
Brain fog | 1 (3) |
Impaired judgement | 1 (3) |